In this video, my entry for the Three Minute Thesis competition, I explain some of the insights I've gained through my research with people about the handling and use of their personal data. I summarise how people think about their data, what we need from our data to really take control and value from it, … Continue reading My thesis in 3 minutes – Understanding and designing human data relations
I have just published this short position paper for the Human-Data Interaction through Design workshop which I will be attending at the CHI '21 conference. In the paper I outline the two very different reasons why people need to interact with data - Personal Data Control and Life Information Exploration. Click the image to read more.
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By storing data about citizens for the purposes of service provision, private and public organizations have disempowered the people they serve, shifting the balance of power toward themselves as data holders.
Through three co-production engagements involving families receiving "early help" support from their local authority and support workers involved in supplying this care, we have identified existing data usage practices, explored the impact of those practices upon the supported families, and co-designed new and improved approaches - both technological and practice-based - that are perceived to offer families fairer treatment, greater influence, and to benefit from better decision-making.
Our findings show that by applying Human-Data Interaction and giving supported families direct access to see and manipulate their own data, both during and outside of the support engagement, the locus of decision-making could be shifted towards the data subject.